For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.
Last year, fellow spoonie Sally, who writes the blog Just M.E., came up with the wonderful idea of getting all the M.E. bloggers who would to partake in a big blog bomb on M.E. Awareness Day. Many people joined in and she shared all of the posts written on her blog. I really enjoyed taking part and reading everyone else's blog and it did reach quite far so, when she mentioned repeating it this year I knew I had to join in again. So, this is today's post. Last years theme was just to write a little about your own journey with M.E. so this year Sally suggested we write about A Vision To The Future so here ya'll go.
|photo credit: Graeme Shannon|
After 6 years of M.E. you kinda stop thinking about the future and focus more on just getting through the present. Tough but true. When I first got M.E. my paediatrician ( who claimed to be a specialist in M.E.) told me I would be better in 6 months to a year and then sent me home. So imagine my surprise when in a year I was worse! Don't believe everything Doctors say (like my Mum mentions in her q&a). Anyway, after that we just focused on the present and the near future which we felt we had a little more control over. However, after 2-3 years of dealing with M.E. I changed my outlook, deciding to stop saying 'when I'm better' knowing that this might not happen. Instead, I made the decision that when the time came we would try for children, knowing that it is doable thanks to Ali and Louise, get married and holiday whenever we could. Thanks to this outlook we've been on a few holidays (all be it on sofas in quiet little cottages), got engaged, and are planning to start a family in a few years. This is what gets me through. So, don't be scared of your future, make the most of what you have and make plans, the tiniest things can fill you with joy. In regards to M.E.'s future; phhhh. I hope that one day there will be a cure, people will know the truth of M.E. and there will be more hope for us. I hope us Spoonies will be able to meet, that we'll be able to share our healthy lives with each other, knowing we all went through the hell of chronic illness and came out the other side all the better for it. That's why I'm posting everyday this month, why I'm trying to raise money for Invest in M.E. and why I keep going.