31/05/2015

MEAM: Round 'Em Up.

Seeing as today is the last day of my M.E. Awareness Month challenge i thought i'd do a little round up and a little ramble especially for you. It's been 31 days of constant posting and trying to keep up with Instagram and Twitter (and failing miserably). Man, am i wiped. When you take into account how ill i am at the moment, posting everyday probably wasn't the best idea, but a girl's gotta do what a girl's gotta do. The end of this month is bitter sweet for me, i loved posting everyday and connecting with you guys but, truthfully, it has made my health decline. Yesterday was a very emotional day for me, i'm pooped after a month of not one good night's sleep, my brain is frazzled and my body is shutting down on me. But, i've done it and boy, am i proud.

I've raised £281 on my Just Giving page and you can still donate which would mean so much to me. All the money you've donated goes to Invest in M.E. who put biomedical research into understanding more about M.E. and hopefully developing a cure to this terrible uncurable disease.

I've written a wide range of posts but there are a few that really got your attention and some that i just really loved writing. The most popular post i wrote was My Life with over 3000 views! I am so pleased that the post got so many views and shares at it was so hard to write and very hard hitting. I have very severe M.E. and life is extremely difficult for me and i'm so glad that i got this across, i've even been told that people want to show it to their Doctor's to show how badly M.E. can affect you. The post is basically just a description of what i go through every day and what it is like to live with severe M.E. And i'd like to say a special thank you to Tom for sharing the hell out of my posts and getting My Life out across the internet. Another post i'd like to mention is my interview with Katharine on living with M.E. and how her life has been over the part 7 years while living with a chronic illness. Katharine has been so supportive of me throughout this challenge and you just have to read our post. The final other post i'd like to specifically share is My Holy Grail, i think it will be extremely useful to other spoonies who rely on the little things to get them through each day. Again, if there's any items that help you survive then please comment and i'll add them in. You can read all of my M.E. Awareness Month posts here on the blog and by going to the archive on the left hand side of the blog and clicking on May. A quick mention that Charlotte from The Tea Drinking English Rose did an interview with me on her blog that you might want to take a peak at. And, Charlotte was absolutely lovely and wanted to understand M.E. better which was really kind.

We also hosted a giveaway and i promised to announce the winner today so well done to Jenny and i hope you love the Box of Sunshine as much as we did! 

I also thought i'd share a few of the things i've enjoyed reading from other M.E. bloggers, as without them i wouldn't have had the inspiration to start this blog and keep at it.
  • First of all, i think you should all go watch Hayley-Eszti and Meg's video Let's Talk About M.E. Unfortunately, i have been too ill and spoonless to watch this video yet but after a little while of proper rest it'll be first on my agenda. I have, however, heard very good things about it so have a watch of these lovely ladies.
  • Faye's lovely boyfriend Jared did a 3 part post series about their lives and finding the right balance between living and living with M.E. It's definitley one worth reading and it's actually quite an easy read too that Michael and i both enjoyed. Part 1. Part 2. Part 3.
  • I'm sure all of you in the online M.E. community are aware of the #May12BlogBomb and if not, it was set up by Sally from the blog Just ME to get as many posts on M.E. as possible for M.E. Awareness Day. There is a special May Blog Bomb post linking every single spoonie post written for it so you can have a read about M.E. from many different perspectives. And, well done Sally, for it beeing such a success!
  • Team Princess raised awareness in style when on M.E. Awareness Day many M.E. sufferers dressed up as beautiful princesses to raise awareness. They raised £5858.24 for a huge range of M.E. charities, incredible! Sian, the wonderful Princess who started it all, wrote a post featuring all the princesses that took part, a must read.
  • And last, but by no means least, i thought i'd include Sally's gorgeous Sleeping Beauty look that she did for M.E. Awareness Month when she wasn't well enough to go out and do all the prancy outfit stuff.
  • There was much much more than this going on in M.E. Awareness Month but obviously i can't write them all down. However, i wrote a post called Spoonie Love which includes all my favourite M.E. bloggers, where to find them and a few specific post links.
Thinking about this month makes me very emotional and i know i'll be remembering this month for the rest of my life and constantly redirecting people to all the posts i wrote. I can't say how thankful i am for every single word you've written to me, every tiny donation and every single view that this blog has had throughout this month. If you haven't read some of them, please do bookmark them to read when you have the spoons. And, i'll be replying to every single comment throughout the next few weeks so please check back to see my reply. There's been blood, sweat and tears put into every single word and post i've written, and now it's time for me to rest. There's still time to donate if you can and please don't ever stop reading. This blog is my lifeline and i love you all so much. 

30/05/2015

MEAM: M.E. & Passing On.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

a page from the book 'Badger's Parting Gifts' my teacher gave to my Mum when my great-grandad died
I never know what to say, 'death' just sounds so horrible. But then, 'fluttering away' sounds waaaay too poncy! So, i'm going with passing on. Anyway, onto todays post (the second to last post of M.E. Awareness Month btw!). Death is not something anyone likes to talk about, yet it's a natural part of life that every single one of us goes through. It doesn't matter if someone dies young or has lived a full and exciting life, we all feel the heart wrenching pain of grief. But, waht about when you suffer from a chronic illness, that already leaves you completely drained, and you lose someone you love?

Last year, my step Nan died, I'm going to call her Nannie Beard as we always did, and i think it's obvious how she got the name. She had been feeling ill for a while and all of a sudden it got much much worse, she eventually collapsed and got taken into hospital where they told her she had lung cancer and that it had already spread nearly everywhere. But, we thought we moght have a little time with her before she left us. Unfortunately, we were so so wrong. She went into hospital, found out she had cancer and within 3 weeks she had gone. At first we thought she might come home for a bit and my Step Mum and Mum would care for her, then we realised this wasn't possible and we thought she might go to a hospice, and then we found out it just wasn't going to be possible and within a few days she had gone. I'm so glad i didn't leave it and say i'll see her when she comes home or in a hospice. Yes, when i went to see her she was completely out of it and couldn't put a sentence together, but i'm glad i got to hold her hand and tell her i loved her. Now, i really pushed myself to do this, and Mum told me i didn't have to worry about it, that she would understand, but, me being me, i just had to see her. Unfortunately, there wasn't time for any of us to really tell her how we felt about her and i wish that i could have so badly. But, i know it was even worse for my Step Mum. I think that was the hardest thing for me, not being able to help. I know i couldn't have done much but i've always been the one to try and make things better in our family and just making a cup of tea would have made me feel better. 

Now, my Step Grandad (not married to Nan) has just been told he has incurable lung cancer. Fortunately, he's got at least a few months so the family can go and visit him and spend time with him. Obviously, this just isn't possible for me and i am really struggling with it. But, this time, i have learnt that there are little things i can do to help and to have that connection. So here are a few little things i'll be/have been doing:
  • Send Cards - All of us spoonies love sending little notes to eachother so i'll be putting this habit to good use and sending little notes and cards. Not just to Grandad though, but all the family, in the hope it might make them smile and they'll know i'm thinking of them.
  • Send Little Presents - I know how much it cheers me up when i get a little surprise in the post so i know that he'll love to receive just a little something that will be relevant to him. Like this Box of Sunshine made by my lovely friend, we're also giving away one.
  • Share Your Unique View - Us spoonies have a unique view on coping with day to day life, especially those of us who are severely ill. They say that M.E. is similar to Cancer in many ways and i plan on using that to help out. For example, Grandad is having trouble just eating anything so i'm writing down all the things i find easy to eat, ways to sneak things in and extras that will help give him a little boost. It's given me a way to help and something to focus on.
  • Find Ways To Cope - It's obviously not going to be easy and you will get upset, but we can all find our own ways to get through it. With Nan last year, i found that just offering little things like watching the dogs or just sending little texts made it a little easier but this year, my severity has increased so i'm finding new ways. Last night, i was finding it hard and getting a little upset so i phoned my Mum (though this is extremely tiring) and just asked her about how Grandad was and how my Step Mum was feeling and just had a chat and it really helped. I just think it's so much better to let it out, if you hold it all in it will only get worse.
  • Tell Them - This one's a little tricky and it depends on your circumstances, but if you have that chance, tell them how you feel, talk about good memories and make sure they know you care. I'll be writing a little card for Grandad, as it's unlikely i'll be able to see him, telling him a few things and then he can read it when ever he's ready.
  • Try To Make Light - God, we're pro's at this! Last year, i missed all but 5 minutes of Nan's funeral because we got lost, in the same place, to the same place, twice. Yup. But, as my Mum told me, she would have been laughing her head off at me. And, when Nan couldn't remember the word for boyfriend when she was telling the Nurse who Michael was, Michael lept in and said body guard and it got a smile. And, last night, i said to my Mum and Michael that everyone's just trying to get out of coming to our wedding! The little things help.
  • Don't Feel Stupid - This is something i have real trouble with. 'What if they don't know how i feel?' 'What if i'm not really their grandchild?' What if no-one understands that i can't be there?'. I feel damn stupid all the time and feel like i'm not part of the family. But, as everyone tells me, everyone understands and i'm always a part of the family.  Most of all,  just want to give my Step Mum the biggest hug in the world and it's stupid that i can't just get up and do that.
I know that this has been directed at people who haven't died suddenly as i don't really have experience with that, but i think that most of these can be applied to that situation too. And, my main point is, don't hold it in and be there for eachother. Oh, and Macmillan Nurses are absolutely incredible! There will be two seats reserved at my wedding and they better bloody well be there.

29/05/2015

MEAM: Moving House.

 For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.
Moving house when you have severe M.E. is not fun. At. All. But, fortunately we kept our heads, planned well and had lots (and lots) of help. So, we thought we'd share a few tips we learnt from moving house with severe M.E.
  • Make Lists - This is such a big help! Moving isn't just about the packing and taking stuff from one place to another, there are loads of household duties (sorting out gas, electric, internet, etc.) to sort out. As you remember things just jot them down and you can work through them slowly with the help of someone else.
  • Lean On Others - God knows how we would have done it without the help of my family! My grandparents, step Mum and Mum all worked really hard to get everything done so i didn't have to stress and Michael could look after me and get started on packing. 
  • Know That Things Take Time - We've been living here 4 months now and still don't have living room furniture and have still got boxes piled up! But, when you're so ill those things don't matter. It's not like i can go into the living room anyway! Just take the things you need out of the boxes and leave the other stuff until you can manage it.
  • Don't Get Stressed - Ha! Easy for me to say. It's easy to feel overwhelmed and like everything's a mess, but things are going to be messy and there's nothing you can do about it. When you're so ill, all you can do is boss people about, and it's bloody hard to not be able to help. So, talk to people, say if something's bothering you and you can come up with a solution.
  • Take It Slow - We packed up for over almost a month and the flat was painted by my family over around 2 weeks. And, this must have worked because i actually didn't find moving all that stressful! It's good if you know in advance when things will be happening so you have lots of time to sort shit out.
  • It's Okay To Take Things Easy - No matter how much you're actually involved with the heavy lifting, moving is tiring. So, yes, you can eat crap food, like ice cream, because it's easy to get down and it tastes damn good. And, if you don't have the time, it's okay to let personal hygeine slip just a little. After all, it's what dry shampoo, deroderant and wet wipes are for.

28/05/2015

MEAM: Recipes for this Spoonie to Try.

We love a good recipe. When you have intolerances to wheat, dairy, bananas (!), fresh pineapple, white rice, onions, garlic and have trouble with sugar, you struggle buying ready made things. And, to be honest, I know what goes into homemade food (important for my anorexia brain and why I've always eaten natural) and it tastes so much better anyway. But, being ill also comes up when choosing recipes, it needs to be easy to eat and be full of goodness to help my sick body along. Michael makes 2-3 recipes a week, at least one sweet and one savoury. So, I thought I'd share a few of the recipes that are suitable for my intolerance and being so ill that we'll be giving a go soon. All of these are vegan and gluten free.

1. Bagels



27/05/2015

MEAM: Mango & Coconut Layer Chia Pudding.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

Now, this post is going to be slightly wierd. I'm not a big fan of chia pudding. Shock horror. I think it has a funny taste and no matter what we do it just won't go so i suppose that's just what chia seeds taste like? Please do let me know if you have any clue, and if there's something off about our recipe don't be afraid to speak up! Anyway, i know many people would love this recipe and i loved it too, just without the chia ;) God, i'm talking absolute crap today! Its looks yummy and if you love chia pudding then you should definitely give it a go. It's so full of goodness, healthy fats and protein and will keep you fuelled. I also think chia pudding makes a lovely light summer breakfast, so snap up some chia seeds and get making.

Mango & Coconut Layered Chia Pudding
Chia Pudding Ingredients: 
1/4 cup chia seeds
1 cup almond milk
1/4 tsp turmeric
1/4 tbsp agave
Layer Ingredients:
1 mango
1 handful fresh coconut cubes
2 tbsp cashew butter
3 tbsp granola - i love this one but with agave syrup.
  • Mix up the chia pudding ingredients in a tub or jar and leave in the fridge overnight. When you wake up give it a good stir and if needed add a little more almond milk or add a little coocnut sugar if not sweet enough. Leave for a further 2 hours, sirring regularly.
  • In a large jar or pint glass, layer up the chia pudding with the layering ingredients and it's all done. I didn't use all of the chia pudding but it's up to you how much you want to use.

26/05/2015

MEAM: It's Okay If You...

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

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  • Get angry and throw things.
  • Get confused and very stressed.
  • Need to use a commode.
  • Cry and just need a cuddle.
  • Get jealous of other people, even other spoonies. 
  • Have to cancel because you just can't do it.
  • Say no one understands.
  • Have more bad days than good.
  • Can't manage physio sometimes.
  • Just can't face the world.
  • Buy lots of goodies online.
  • Eat ice cream for every meal, just for one day.
  • Don't wash for weeks and weeks.
  • Rely on dry shampoo to feel even a tiny bit normal.
  • Have binge watched every episode of Big Bang Theory.
  • Don't change your pyjamas 3 days in a row. 
  • Tell people to be quiet around you while you rest.
  • Get over excited about post.
  • Need to have a good moan.
  • Want to give M.E. to someone else just for one day.
  • Wear sunglasses inside, you're not a douche.
  • Can't stand the sound of someone breathing.
  • Get tired at the thought of going to the toilet.
  • Can't speak to your family for weeks and weeks.
  • Feel like you know the presenters on This Morning.

25/05/2015

MEAM: Challenges.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

Writing a post every day for M.E. Awareness Month is one of the hardest things I have ever done! Throughout this month I have regretted it at times and really struggled getting posts done, then sharing it all on social media to raise awareness. It's been a bloody tough one. But, we're on the last week now and I'm really excited to complete this goal, see how many blog views we've had and how much money we've raised. Michael and I are also going to be having a little celebration on Sunday, the last day of MEAM, with lots of yummy foods! Michael will be making this Blueberry, Lemon & Almond Cake which is 'everything free' so a healthy treat and we've bought some special fancy lemonade, and Izzy might get a sneaky bit of melon and cashew butter. She has posed beautifully for many photo's so... Maybe some of you could have a little treat along with us and share it on Instagram or Twitter, one final push and a little thank you from me to you for all being so great. Sorry this post is a little rambly, me, Michael and the pup have got a tummy bug so we're all a bit all over the place. But, we can do it. We should all give ourselves a pat on the back for even the tiniest of achievements, because, when you have M.E., every single thing we do is amazing. So, whenever you feel down or useless, think about all the challenges you face everyday, how you overcome them even when you can barely move, and know, that you do the most incredible things everyday, and we're all so proud of you.

24/05/2015

MEAM: My Holy Grail.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

As promised, my Holy Grail post! We all have those little things that get us through the day to day life of being a full time spoonie. And, I don't think I'd be half as good at surviving without them. So, here are mine:
  • Eye Mask - I don't know where i'd be without this. Sometimes it get annoying having something stuck to you face (especially when the hairs from our crazy maulting dog get stuck to it!) but you have to weigh out the pro's and con's. Obviously, apart from a couple times a week, Michael and i go to bed at different times so it's great to still be able to cuddle up to him whilst he's on the laptop but not get blinded by the light. I use it a lot in the day too, especially when full on resting. Also, we live in the brightest flat known to man (everyone else loves this but i don't quite think they thought it through properly :P) so at 5 o'clock in the morning the sun is blaring through our window like it's the middle of the day and i need the eye mask to keep me sleeping.
  • Heat Pad - Mine's a cat and his name is Poppit (pop it in the microwave! Geddit?). I've had problems with my bowels for the past 10 years, let alone the last 6 with M.E. pain on top of that, I need this little guy. He's also great for our bad temperature control as you can out him anywhere on your body and heat him to a temperature you prefer.
  • Thisworks Sleep Plus Pillow Spray - I Love this stuff! A few sprays on my pillow and I immediately feel completely relaxed. I prefer the strong stuff but if you're a little more sensitive they do a normal version too. And, you can get samples so I really recommended you give this a go.
  • Batiste Dry Shampoo - I use Batiste in particular as they are completely cruelty free. Seriously, I would be an absolute wreck without dry shampoo. My hair affects my confidence so much which means as long as my hair's okay-ish then I don't feel so minging. I can leave my hair a month using this stuff, although halfway through my head is super itchy but I have a very sensitive scalp. Just one whizz over my hair and I feel a little better.
  • Wet Wipes - I can't shower at the minute, it's just too hard so wet wipes are the key! When I'm getting changed all Michael does is give me a quick wipe down. I think the best wet wipes are when they're a little more wet/soaked so you feel that little bit cleaner.
  • Izzy - Ahh. I couldn't live without a dog now, they help my state of mind so much. I use Izzy as huge heat blanket, she just cuddles up against my body like in this blog post to keep me toasty. Her body heat really helps with my pain. Also, she knows when I'm having a really bad day and will stay close to me and keep trying to lick me.
  • Puss - Puss is the orange Octopus in the photo above and he's Izzy's bestest friend. All I have to say to her is 'go get Puss' and she will put him on the bed for me and wait until I can throw him for her. But, she'll quite happily play with him by herself by throwing him up in the air and chasing him! It's super cute.
  • Audible - I really thought i was going to hate not actually reading a book, i was the kid in school that when a book was being read out loud in class, i would ignore it and read it myself quietly and end up finishing book by the time they'd read the first chapter! But, i have adjusted and now actually love listening to an audio book. I have trouble completely resting becuase my head just buzzes so listening to an audio book is the next best thing. For Audible you pay £7.99 a month for use of the app and you get 1 free book token a month which i think is really good. I recently did a post on my favourite audio books so far.
  • My Mobile Phone - My phone is my connection to the outside world. That sounds so dramatic but so true! It allows me to use Instagram and Twitter to connect with other spoonies. I can talk to my best friend nearly everyday through text, pinterest and snapchat even though we're both ill and live in different counties! I use Audible on my phone to listen, spotify to relax with and i can text with my family when i can't speak. And, i even use the Tesco app to do all our food shopping, so i can help with someting and choose when is best to get it delivered.
  • Tumbler -I had a really really bad habit of spilling water everywhere, the amount of times i ended up sat in a puddle of water. No joke. But these are great! There is a little cap under the straw hole that closes when you remove the straw so you won't spill a drop. Easy Peasy. And, straws are needed when you can't lift a cup and have trouble swallowing. Michael uses these for my smoothies too as we know it holds a manageable amount for my little belly.
  • Gluten Free Oatcakes - As Katharine mentioned in our interview, crackers and the like are perfect for us spoonies. So, as i'm vegan and gluten free, oatcakes are the ones for me. I find these great to help with sickness (tip: add a sprinkle of ground ginger on top to help settle your stomach), i practically lived off of these in the two times i got gastroenteritis in the past nine months. I have trouble with not eating enough or my sugar so when i get a bit weak or dizzy due to food, Michael wacks a bit of cashew butter and cinnamon on top of a couple for me and they seem to do the trick. My favourite way to eat these as a dinner is to slab a bit of nut butter on them, then some nice low sugar jam and some chopped strawberries to top off. So. Good.
  • ASOS Pyjamas - ASOS don't sell my pyjamas in the picture anymore but there are a load in the same fit, just a different pattern. These are the most comfy pyjamas i've ever worn, if you go to Anna's Instagram you'll see that she agrees. They're really soft, oversized but not excessively and wash really well.
  • Huge ASOS Jumper - I love me some jumpers. Before i got ill, i went to the beach with my Mum and her patner but i got so cold that i had my own jumper on, my Mum's on top of that and Terri's on top of that. Everyone else was in bikinis! Anyway, you can't beat a big comfy jumper to snuggle up in, and layers are great with temperature control too. I bought the jumper above (the link is for a similar one with better sizing) 2 years ago now and even in the smallest size, you could fit 3 of me in it! I absolutely love it though, and i'm never throwing it away. Never.
 And, here are few that others have told me about:
  • Peppermint Essential Oil - My best friend says this is great for headaches, all she does is rub a bit on her forehead/temples/upper lip/pulse points and it helps relieve the pain.
  • Accupressure Mat - She also says that she finds this great to help brain fog or when her mind is going absolutely bananas! Also, great for pain. I'll be trying one of these so i'll let you all know how i get on.
  • Bike Phone Holder - One lady told me that she attaches a bicycle mobile phone holder to her bed rail so that she doesn't waste energy trying to hole her phone up.
  • Remote Control Plug Adaptor - I was told that you could buy these so that if you can't get up to turn things off, all you have to do is point the remote! Definitely a good idea for those of us that are alone a lot.
  • Kindle - Someone mentioned this, and before i got severely ill i loved mine. At first i thought i'd hate it and miss the feel of a book and the smell of it's pages but i actually really liked it and it got so used that eventually it just died on me! It's so light and you can get stands for them too, so if you do have the energy to read, it's a great buy.
That's it. But, I'd love if you shared your own Holy Grails in the comments, we always love hearing from you.

23/05/2015

MEAM: Reminders.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

{I wrote one sentence last night and had to stop - there was a huge noisy ass fly stuck in the curtains and Michael was out walking Izzy. My ear plugs were on the other side of the room so I tried stuffing my ears with toilet roll! Didn't work well so I rent Michael and just shouted at the phone that I couldn't hear him and he had to come home. By the time he got back I had my fingers in my ears and was in floods of tears. But, it had gone! Stupid bloody fly!

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Everywhere i look there are reminders. Reminders of what i've lost, what i can't do, and might never be able to do. You turn on the tv and no matter what you watch, there will be a reminder. I love This Morning, but they talk about days out, shopping with Gok and recipes you can make. But, i can't leave the bed to go to the kitchen, i can only online shop but i have very little money, i can't wear fancy clothes and try things on, i won't be able to leave the flat this summer to go anywhere exciting and i won't even have the curtains open to see the flowers and bright blue skys (i know, i live in England, but go with me). I think the worst thing for me is missing out on the experiences. And, what's worse, is the thought of Michael missing out on these things because of me. It's an awful feeling, when you've been with someone since 15, but you've never been able to do all the 'rights of passage' that everyone else our age has done. Yeah, we went to a few parties when i was first ill and we went on one holiday with Michael's Dad, but that is no way near enough for me. I wanted to travel, learn to be a veterinary nurse, go to festivals, dance the night away, live in Brighton, etc. And most of all, i want Michael to experience everything, not be stuck with me. So, when i see pictures on Instagram of people living their lives and doing everything i want for us, when i read blogs about little outings or when we watch a movie and they're going to festivals or dancing all night, i find it had. This is something i don't talk about much, i just get on with it and Michael can attest to that, i'll get upset about it maybe once/twice a year. But, yesterday, after my health has just been constantly declining, i got very upset about it. I tell Michael he can go, he can do all of those things but he tells me no, that he doesn't care, and that all those things don't matter as long as we're together. So i'll keep going, in the hope that one day, even if we're 60 years old, we'll go to festivals, see elephants in the wild and drive round America. We will do it. And oyu haveto beleive it too.

22/05/2015

MEAM: Spoonie Wishlist.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

I don't know one spoonie who doesn't love a bit of online window shopping! And, we all love getting little things in the post, it makes our day. Michael even answered the door to the postman in my tinkerbell dressing gown, they're buddies. And my best friend says the postman jokes about her post with her Mum! Seriously though, what would we do without a postman and online shopping? Don't. Even. Talk. About. It. It's also difficult when us spoonies live off hardly any money, it could be so easy to get into debt with store cards and the like. So, now i just have a huge ASOS wishlist that, when i actually do have a little money, i pick one or two items off of. I bloody love ASOS! And their pyjamas are the best in the world, so damn comfy and they wash well too (no shrinking!). So, here's an ASOS pyjama wishlist.


There should be at least one set for everyone. I know most spoonies prefer loose bottoms as they can't handle things touching their legs so the pink floral pyjamas or the short sets would be perfect. However, i find loose bottoms get tangled round my skinny legs and it really hurts, and they ride up and pull round my calves (my biggest pain source). Also, i have had very severe 
Raynaulds Phenomenon since i was 12 and it causes a lot of problems, like if i wear loose bottoms my legs get cold which then causes extreme calf pain on top of the normal M.E./Fibromyalgia pain. So, i prefer tighter bottoms, and the top row of pyjamas are by far the most comfortable pyjamas i've ever worn! But, i thought i'd share with you a few 'normal' clothes that are spoonie friendly too.

6. Mini Cami Dress - £12

So, there you go. A couple of things to cover up the greasy 4 week old hair, a cami dress for when it's hot and your body just will not regulate your temperature, a cardigan to throw over your dress when you get cold again, anda pretty painless bra to make you feel a little more sexy and feminine. Then, i must talk about those pants! I have real trouble finding knickers small enough to fit me and that don't twist around or fall down. I used to wear Topshop knickers but they were so big that they were like shorts, and just faded really really quickly. Then, i tried these! They're still a tiny bit big but they're the best i've found. Really comfy, super cute and stay lovely throughout wash over wash. Done. I hope you like this post! Are there any pyjamas you would recommend? And are there any 'normal' clothes you've found suit your spoonie lifestyle? Please comment below, i love hearing from you. And, quick note, i will reply to all the comments when M.E. awareness month is over so please check back to see my reply :)

21/05/2015

MEAM: Blogiversary + a Sunny Giveaway.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

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Today our blog is 2 years old. It was 2 years ago that i sat up in bed, bit the bullet and typed out my first ever post. You see, i'd been putting it off for months, the old line 'when i get better i will [insert all dreams here]' had me by the balls and i didn't quite know where to start. But, i did it and know i'm a hell of a lot richer (metaphorically speaking unfortunately). I've made some amazing friends, become more confident, learned a lot more about M.E. and given my life a bit of direction. We've loved every single word we've written, every single comment you've left and every email we've been sent because of this blog. So, please keep reading, commenting and sharing your thoughts with us!

Leading on from that, today we have our first ever giveaway! And, to make it even sweeter, it's a product made by my lovely friend. It's funny, 2 years ago i didn't even know she existed and now it feels weird if we go too long without a message. She also has severe M.E. and we were introduced when she sent me an email after reading one of my first posts. I feel so lucky to call her a friend, we are so incredibly (make that scarily) alike and she supports me through everything. And, to think, one little post and i now have such a lovely friend. Anyway, no more gushing, i promise (maybe a little...). She is bed bound like me and like me she wanted to do something to help others so she came up with the idea of Sunshine Boxes. The profits from selling the boxes are going straight to the Dr Hadwen Trust, which is a charity that research ways to cancel out testing on animals, something we're very passionate about.

They're full of lots of little things that are sure to put a smile on your face. We don't want to give too much away but you can buy your own Box Of Sunshine on ebay, or maybe you just want to take a peak. Now, on to the giveaway!

To enter all you have to do is leave a comment below telling us what makes you smile and leave your email address. UK entries only and no more entries after the 30th May. We'll then 'pick a winner out of a hat', and announce and contact the winner on the 31st of May. C'mon, get commenting!

20/05/2015

MEAM: Vegan & Gluten Free Luxurious White Choc Raspberry Porridge & Apricot Bliss Porridge.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

I think porridge is the perfect poorly person meal. I mean, you can add anything! I've even seen savoury porridge, but i think i'll leave that one up to the culinary masters. I might be a little bias when it comes to porridge. You see, when i was little i'd stay with my Nan and Pamp every Friday night, i'd sleep in a sleeping bag on my Nan's side of their bedroom floor. We'd get up at 5.30 and i'd help make cups of tea, then i'd climb into bed between them and we'd all drink our tea, and a certain smell of tea always reminds me of my grandparents. Saturday mornings were food shop day so we'd pop off to Tesco's at 6/7 and they'd spoil me with Flumps and packets of Jam Cream Biscuits that would disspaer in one go. But, the best bit, as i remember, was getting back and Nan making a big saucepan of porridge. I've never had porridge like it, it was just delicious, and then topped with honey. Ahh. And, a little secret, after that we would have scrambled egg on toast. 2 breakfasts? I bet you wish you'd been there.

Anyway, porridge. Or oatmeal? Is that the same? Porridge is awesome for us spoonies. Oats are so good for you, you can use any milk you like, or just water, add any topping you like and even nutritional extras. You can get all the goodness you need from porridge and it's so bloody easy to eat! You don't have to chew it (something that i'm having particular trouble with) and it goes down very easily and, i think, this is as good as any main meal when you're really struggling with food. Sometimes i think of my food needs as someone with severe M.E. as i would a toddler transitioning from pureed food to the whole stuff. We have trouble swallowing, trouble chewing, don't like certain things and struggle with feeding ourselves, you see? So, if you've never tried porridge (Michael hadn't until 4 years ago!) then you must, especially if you're a spoonie, and you can keep adjusting things to get it just right for you. I personally prefer my porridge a little runnier as my tummy just can't handle the stodge, and it has to be made with coconut milk, for some reason it tastes wierd with almond. But, today's porridge's are delicious. The white chocolate and raspberry one is very creamy and the raspberries add a nice tang to it which balances it out so well. Then, the apricot porridge just tastes awesome, both kinds of apricot bringing so much flavour. 

Luxurious Raspberry & White Chocolate Porridge
Ingredients:
1/2 cup oats
1 cup coconut milk
1/2 bag dairy free white chocolate buttons (i like Tesco's)
1 handful raspberries
  • Put the oats into a small saucepan and pour over the milk.
  • Cook on a low heat, stirring regularly until the oats have absorbed the milk and it's becoming nice and creamy but not too thick.
  • Add the white chocolate and stir through whilst in the pan.
  • Pour into a bowl and top with the raspberries.
  • Eat it all up.

Apricot Bliss Porridge
Ingredients:
1/2 cup oats
1 cup coconut milk
1 tsp coconut sugar
2 fresh apricots, sliced
2 dried apricots, chopped
  •  Put the oats into a small saucepan and pour over the milk.
  •  Cook on a low heat, stirring regularly.
  • Halfway through cooking, when the oats are starting to absorb the milk, stir through the coconut sugar and add the fresh apricots and 1 of the dried apricots.
  • Keep stirring until cooked and creamy.
  • Pour into a bowl and top with the other dried apricot.
  • Shove it in ya' gob.

19/05/2015

MEAM: Just For Fun.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

When we first started the blog we used to have posts full of pictures that we had found and made us chuckle, people seemed to like them so i'm bringing it back just this once. Just take a peek and hopefully you'll see a couple that make you laugh!








18/05/2015

MEAM: Thank You.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

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I am knackered. But, so bloody thankful. I can't explain how amazing it was for me to see that we got 2,308 views yesterday, especially as yesterdays post was a hard one to write about my day to day as someone suffering from Severe M.E. That will sound tiny to some, but to a girl who has no energy and has had to strain to write every single word, that's incredible. We normally average around 100 views, so 20 times that is just. Wow. My goal for this month was for as many people as possible to read this blog so they could see what M.E. is really like, how it tears our lives apart and leaves it broken on the floor with no way to put it back together. I think i can say that i'm achieving that, and there's still 2 weeks to go!

Now, post ideas for the rest of the month. Any ideas? Anything you'd like to see? Please leave a comment. I can definitely tell you there will be posts on:
  • Moving House with M.E. ~ this will be from the perspective of a severe sufferer and her carer/fiance so if you have any tips or other views please comment or email me and i'll include them in the post. 
  • A Giveaway ~ I'm keeping this one under wraps but it's going to be a gud'un and absolutely perfect for spoonies.
  • Favourite TV Series & Episodes ~ I know us poorlies get through a lot of TV so we thought we'd share our favourites that we don't mind watching over and over again. We'd love to hear any reccomendations you have.
  • Spoonie Friendly Recipes ~ So far, we have shared our delicious everything free Avocado Cake and my favourite everything free Microwave Crumble. Still to come, we're going to be sharing 4 yummy porridge/oatmeal recipes, a chia pudding and my tapioca recipe.
  • Holy Grail ~ I thought it was about time i shared all the things that get me through each day. I have a feeling this one's going to be really helpful for other spoonies and maybe people looking for spoonie friendly gifts.
So, that's what's coming up and much much more. But, before i go i'd like to say a huge thank you to every single one of you who has read this blog so far and an even bigger thank you to those of you have donated to my Just Giving page! Truthfully, at some points i have felt like giving up, my health is declining every single day but all of you have kept me going, kept me excited and passionate about what i'm doing. I'd also like to say thank you to all the other M.E. bloggers for keeping me inspired, being such wonderful ladies and letting me be a part of the wonderful spoonie community. 2 weeks to go and i hope i can raise so much more awareness and pennies! Lots of love to you all. 

17/05/2015

MEAM: MEAW: My Life.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest In M.E.in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

I don't really talk about my daily life, what a struggle it is and what I actually manage to do. It scares me, terrifies me that my M.E. seems to be progressive, 6 years and never getting better takes it's toll on someone. But, I hope and hope that I will survive this, that it won't kill me, that I won't be another statistic. So, I keep smiling, keep working, keep going. And, I thank Michael for that, his persistent optimism and  Unfortunately, i don't have good and bad days anymore, they're all the same or they get worse as time goes on. So, here's a look at my day.

My Life.
I never have a set 'wake-up' time anymore but it usually varies between 5 and 8. Either way, i still feel knackered. Then, i wake Michael up, but this can take a while, he's a deep sleeper, and i'm not loud enough or strong enough to get it first go! We usually cuddle for a bit but this can be difficult because of all the pain and sensivity covering my body. Michael then helps me onto my commode (i use this all the time now) for my first toilet of the day, and sorts the bed out to make it as comfy (comfy? does that even exist any more) as possible. I then need breakfast, i try to eat as much as possible for the first meal of the day as it's the easiest time for me to eat and if i try to eat more for breakfast the other meals aren't as hard. My favourite breakfast is Michael's microwave crumble, it's soft, full of fruit and good energy. After breakfast I have to take a laxative, I have to take a lot throughout the day as my bowels don't work great and I don't think they have the energy to work anyway! But, lately these give me a tummy ache (more than normal) and make me uncomfortable so every meal is incredibly tiring.

Throughout the day i will have trouble speaking, forget when i'm halfway through a sentence and i can't remember what things are called but luckily Michael speaks fluent M.E. Laura! Then it's time to take my medication (dihydrocodeine & a concoction of vitamins), I hold my cup and straw and Michael pops the drugs in my mouth as I just can't pick them up, so frustrating! Michael brushes my teeth with my baby toothbrush (I still have a baby tooth and the others are sensitive) and if I'm lucky, we can use the electric one. I get changed every other day, it's very tiring and Michael has to do all of it for me.

Whilst Michael's pottering around, i check my emails and read a few blogs. In MEAM i try to write a little bit of a post on the tablet we bought for it's lightness but some days it just ain't gunna happen. Once a week Michael has to change the bed: he has to take me into our huge, comfy, bad-ass sofa, however this week my pulse hit the roof and my whole torso was covered in sharp stabbing pains. Now it's time to lay down. Due to childhood trauma and worries bolbbling around my head i find it very hard to do 'proper' no-stimulation resting (i do it for 10 minutes at a time and am trying to gradually build it up) so i lay with my eye mask on and listen to my audiobook. I lay like this until lunch, usually with Izzy cuddled up with me like the picture above for heat on my hurting stomach. Michael will have to keep help turning me as, because of my weight, i am very susceptble to bed sores. I may need to use the toilet at some point too, this is so tiring and often makes my stomach pain flare.

Then it's lunch, i usually think about this the night before, along with breakfast, so i don't have to stress. I love salads but most of the time there's too much chewing involved! Michael usually makes me one dinner recipe a week which i'll usually have a bit of, or he's frozen something that he can just heat up, and when he cooks he'll chop everything up small so it's easier to eat it myself. I have to sit up (or should i say propped against pillows) again but not for long. But, what happens when you hurt too much propped up but if you lay down too quick you get incredible trapped wind? We watch an episode of one of our favourite series with lunch, it's the time when me and Michael get a second where i'm more awake and he's not busy. After we've finished, he'll move me a little lower and i'll stay like that until my body can handle laying down. While i'm sat there i'll maybe tweet or instagram but i'm a bit all over the place with social media!

Izzy will bring me her ball, bless her, so i'll roll it a few times but i ca't manage anymore. I'll start listening to audible again then, when Michael's finished cleaning the kitchen, he'll lay me down and come in for a cuddle. By this point, i can't keep my eyes open and i'm in so much pain and very senstiive to the tiniest of things. Eg. Michael loves to sing all the time, which i love!, but i have to ask him to stop because my mind boggles. I hate that. I stay like that until dinner time. Dinner is usually a smoothie, i can drink this pretty much led down which helps me a lot. If i have anything else instead, Michael will have to feed me. Sometimes, i watch a YouTube video with my dinner but mostly i just carry on listening. Though, i will check my phone and maybe message my best friend or do something on social media. I'm having trouble with that and keeping up with MEAM but i manage. Now, i take some more pain medication and Amitriptyline (for pain and sleep, i don't need anti-depressants). Again, Michael has to feed them to me as they're just too hard to pick up.

Now, starts my bedtime routine, though it hasn't been working lately so i just get more and more tired everyday and i hate bedtime because of the hassle. This is when i'll try to do some physio and tensing exercises depending on the pain, and Michael will have to help me do streches. Obviously i'll need to use the toilet before bed but this is so difficult and (as all day every day) it takes me a while to go and it really hurts. Michael will put my sleep/neck pillow on the bed for me, then help me get comfy and onto my side. Then, we get Izzy on the bed like in the photo above, as she sleeps there and like that as it helps me. I'll listen until bed time, maybe resting and doing nothing for 5 minutes here and there. I cuddle up with Izzy and try to go to sleep with Michael stroking my back. This can take anywehere between 30 minutes-7hours to get to sleep. I wake up throughout the night, have vivd nightmares and the pain makes me restless so i never sleep solidly and all this on top of non-restorative sleep does not make for a good night and i never ever wake up feeling any better.

So, there you go. I'm always worried of what everyone thinks of me, that you all think she's not pacing/resting right or 'well she's blogging everyday'... But, I want you all to understand what it's like, you only see a tiny bit on here and you'll all have noticed I've been mia for months. That's because of how ill I've become. So ill that I end up going weeks and weeks without even speaking to my Mum or Nan. And, I'm doing M.E. awareness month because of this. I want there to be more representation of us with severe M.E. who can't leave their beds, I don't think people outside of the community see this extreme side of things. I've been planning this since Christmas so I've been stock piling little bits of writing here and there. I guess I just want people to understand how hard this month is for me, for someone in this situation, in the hope that you'll donate on my JustGiving page and give a gal a hand.

16/05/2015

MEAM: MEAW: Gluten-Free, Sugar-Free & Vegan Microwave Crumble.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest in M.E. in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.

I love crumble. It's my favourite breakfast by far. Breakfast you say? Yep, it's that good for you, and even if it wasn't, we're allowed a little treat in between all this pain. This crumble is so easy to eat, nice and soft but with a chewy, crumbly mixture that will melt in your mouth. You can get everything you need from the crumble, yes, the microwave may kill a few nutrients but not too many and it keeps me going so it must be good seeing as i have trouble with getting shaky and dizzy half way through the morning! You get slow releasing carbs from the crumble topping, vitamins and minerals from the fruit and if you have a dollop of coyo with it you have your plant based and healthy fats. Although, sometimes it's nice to have a scoop of ice cream, like in the photo's, and seeing as the crumble's completely sugar free you can just about get away with it. Ta Da! Here's Michael's awesome recipe.

Apple & Blueberry Crumble - Gluten free, sugar free & Vegan (serves 1)

Ingredients:
1 apple (i love granny smith)
1/2 cup frozen blueberries
1/3 cup buckwheat flour
1/3 cup oat flour
1/3 cup oats
2 tbsp vegan spread/butter (more if the flours aren't coming together very well)
  •  You will need 1 cereal bowl.
  • Chop the apple into bite size chunks and place in the bowl with the blueberries. Microwave the fruit for 1 min - 1 1/2, just so the fruit has softened and given a little juice.
  • In a mixing bowl rub the flours, oats and butter until they form a breadcrumb texture.
  • Spread the cruble mixture over the fruit and pop in the microwave 3-4 mins, it won't turn golden but the fruit will be bubbling at the sides and the crumble will be a nice chewy/crispy texture.
  • Done.

15/05/2015

MEAM: MEAW: Spoonie Love.

For those who don't know, for M.E. awareness month (May) I am writing a post, despite my severe illness, every single day. I'm doing this to raise money and awareness for the neurological chronic illness M.E. and the charity Invest in M.E. in the hope that one day we may find a cure. So, I'd really love if you'd head over to my JustGiving page and sponsor me throughout this challenge. Thank you.


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When i first got M.E. i had no idea what an amazing community there was out there, and not just for M.E. either, but all the chronic illnesses too. The spoonie community rocks. I truly believe that without this lifeline there would be a hell of a lot less survivors. No matter how ignorant the Doctors are, how rude and inconciderate friends or family are, how much we feel alone, how much we hurt, there are always others going through it, all you have to do is reach out. It's a great place to have. Anyway, it took me 3 years of M.E. before i found the community and i was so upset that i'd gone so long, winging it myself, before knowing about all the love. So, i'm not going tolet you feel the same! I've decided i'm going to share all the M.E. blogs i know of, seeing as that's a good place to start. As for Instagram and Twitter, all you have to do is type these baby's in; '#spoonie' '#mecfs' '#severeme' '#meawareness' '#spooniesisters' '#chronicillness' '#myalgicencephalomyelitis' and many more but these should find you some lovely fellows. But, here are as many blogs as i can think of that might help you out and give you that extra bit of hope.

AnnaM.E. Myself and I - Anna has had M.E. for nearly 5 years now. Her blog is a great one to read if you have trouble getting out how you feel and what it's like, share with your family.
SallyWheeling Along 24 - Sally has had M.E. for 4/5 years. Her blog is not the usual health blog but it focuses on wheelchair fashion. I've never seen anyone who looks quite as fabulour stuck in those contraptions. Sally also wrote a post on severe M.E. which is a must read but hard hitting too.
KatharineKatharine and M.E. - Katharine has had M.E. for 7 years. I might be bias but this is absolutely one of my favourite blogs to read! It is beautifully written and very in depth and informative. I did an interview with Katharine for M.E. awareness day that's full of wise words on what living with a chronic illness is truly like.
Hayley-EsztiHayley-Eszti - Hayley-Eszti (do you reckon I could say her name one more time?) has had M.E for 4 years. This girl is the sassiest star I've ever 'met' and constantly raises awareness in style! Hayley-Eszti has recently been in the press for her quest for disabled models. Head over to her blog as there's so so much good stuff to read.
Emma - Emma's Looking Glass - Emma has had M.E. for 5 years. Emma rarely writes about M.E. but instead does a lot of gorgeous fashion posts. It's refreshing for a 'normal topic blog' to be written so successfully by someone so poorly.
FayeFreckles & All - Faye has suffered with M.E. for 2 years. Faye is just so sweet and this definitely comes across in her writing. She is very positive and talks a lot about moving forward with M.E. like this reaching acceptance post. I especially love the posts her boyfriend Jared has written for a different view on M.E. from the loved one. There's a carer q&a with Jared and his most recent guest post.
SianMe, Myself & M.E. - Sian has had M.E. for 4 years. Sian writes a load of awesome posts on living with M.E. tips and a few about mental health. She has recently been campaigning for M.E. charities by organising a princess event that she's raised nearly £5,000 for! You can still donate too!
AliAll About M.E. - Ali has suffered with M.E. for 12 years! Though she has managed to fit having a beautiful little girl into that. Ali's blog includes many things about being a Mum with M.E. and I find it incredibly inspirational. Also, if you like glitter, then you must read this blog. She recently did a post with Sian on two different perspectives of M.E. that is worth a read.
JennyJenny Helen, my spoonie life - Jenny has had M.E. for 8 years now. I love this blog! I find out so much and I love sharing her posts as I can never quite get it out like she does. Her post What is M.E.? Over worked, lazy or neither? is particularly thought provoking.
MegMeg Says - Meg has been stick with M.E. for 3 years. Meg's blog is a total must read, through that and her Instagram she managed to get a blogging job that she can do from the comfort of her bed. It's not all totally M.E. related which is nice as it's just tied throguhout, letting people know the truth of M.E. slowly. I think everyone should read Megs post M.E. is not a mentall illness. Full stop. She also has an awesome YouTube channel that is mainly fashion and beauty related, although recently she filmed a video on M.E. with Hayley-Eszti for M.E. awareness day.
Emma DrusillaEmma Drusilla - Emma has had M.E. for 3 years. Emma is so intelligent and I love all her posts. My most recent favourite is her own stone theory which I think is a great way of explaining chronic illness. But, her YouTube channel is where it's at.
ClareA Life Within An Illness - Clare has suffered with M.E. for 10 years. For some reason I didn't realise Clare had a blog until recently so I'm very behind but from what I have read I know it's going straight on my must-read list and I can't wait to get reading! For M.E. awareness day she posted A Day In My Life which shares her daily routine and shows what it's like behind closed doors.
Rachel - This Open Book - Rachel has had M.E. for 3 years. Rachel is yet to post on this new blog but I'm excitedly waiting for her first post. Her previous blog was amazing! Rachel writes so beautifully and all her words are so amazing that I may have been left a bit tearful too many times. She also has the support of a lovely boyfriend so it's nice to know other spoonies can find love.

New blog that sounds promising and is an amazing idea - Extra Long Duvet Day

Those are all my favourites and one's I read regularly. However, there are many many more that are worth a read and lots more that cover all chronic illnesses that you should be able to find through Instagram or Twitter. I hope this helps some of you and that you're all as well as possible.